How I took my son with MCAS to Israel on Chanukah

What is MCAS ? "Mast cell activation syndrome (MCAS) causes a person to have repeated severe allergy symptoms affecting several body systems. In MCAS, mast cells mistakenly release too many chemical agents, resulting in symptoms in the skin, gastrointestinal tract, heart, respiratory, and neurologic systems. Mast cells are present throughout most of our bodies and secrete different chemicals during allergic reactions. Symptoms include episodes of abdominal pain, cramping, diarrhea, flushing, itching, wheezing, coughing, lightheadedness and low body pressure. High levels of mast cell mediators are released during those episodes.

 

 

My son cannot eat nuts, eggs, fish, dairy, chicken, wheat, turkey. Anything with dyes and preservatives makes his mcas flare up. Only recently did we find out that anything activated or leftover can make his condtion worse so any food that is cooked too long can affect him as well as food cooked in the morning and then kept in a warmer all day to keep it warm 

 

How did I fly with my son to Israel? It took months of preperation and planning but bh we nailed it. Here are some ideas that can help you travel abroad with a child with so many restrictions.

 

Plan early and every week put aside some food to vacume pack using a Vacume pack sealer  and bags

 

Here are some allergy friendly ideas of what you can make and freeze.

 

Egg free potato kugel, Egg free latkas, shepards pie, oat challah, egg free burgers, egg & gluten free donuts, gf egg free breakfast muffins. chococolat covered rice cakes, oat danishes. Most foods need to be frozen first and then its easier to vacume pack. If you plan on vacume packing kugel. Put wax paper in your aluminum pan and after you freeze the kugel you can slide it right out of the pan and then vacume pack it immediately

 

How to travel on the plane with all your frozen food?

This amazing briefcase kept our food frozen. We used these frozen ice withi it

 

There are outlets on the plane and you can use a hot logic food warmer to warm up your food.

when you land in israel and you want an option to  warm your food up  in your car or an oven the israeli outlet. Here are some ideas that can help you .

 

 

 

To be continued .....